Cristin-prosjekt-ID: 352790
Sist endret: 4. september 2021, 07:56

Cristin-prosjekt-ID: 352790
Sist endret: 4. september 2021, 07:56
Prosjekt

Surveillence of Cerebral Palsy in Europe (SCPE)

prosjektleder

Catherine Arnaud
ved Frankrike

prosjekteier / koordinerende forskningsansvarlig enhet

  • Medisinsk klinikk ved Sykehuset i Vestfold HF

Finansiering

  • EU
    Prosjektkode: JRC-PUBLIC HEALTH

Klassifisering

Emneord

Cerbral parese

Tidsramme

Aktivt
Start: 1. oktober 2009 Slutt: 31. desember 2030

Beskrivelse Beskrivelse

Tittel

Surveillence of Cerebral Palsy in Europe (SCPE)

Vitenskapelig sammendrag

SCPE is a collaboration of registers of children with cerebral palsy which formed in 1998 and since then has undertaken successive programmes of work funded by the European Union (EU).

The work has brought together paediatricians, paediatric neurologists, epidemiologists and therapists from across Europe.

The aim of the SCPE network is to disseminate knowledge about cerebral palsy through epidemiological data, to develop best practice in monitoring trends in CP, and to raise standards of care for children with cerebral palsy.

Why have a register of children with cerebral palsy?

Cerebral palsy occurs in about two babies per 1000 live births. It is important to measure trends in prevalence over time and to understand better the causes of the cerebral palsy. Registers of all children born in a region with cerebral palsy can help with this. They can also help with planning services and allow parents of children with cerebral palsy to be told about research projects.

prosjektdeltakere

prosjektleder

Catherine Arnaud

  • Tilknyttet:
    Prosjektleder
    ved Frankrike

Guro Lillemoen Andersen

  • Tilknyttet:
    Prosjektdeltaker
    ved Medisinsk klinikk ved Sykehuset i Vestfold HF

Sandra Julsen Hollung

  • Tilknyttet:
    Prosjektdeltaker
    ved Medisinsk klinikk ved Sykehuset i Vestfold HF
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Resultater Resultater

Trends in Prevalence and Severity of Pre/Perinatal Cerebral Palsy Among Children Born Preterm From 2004 to 2010: A SCPE Collaboration Study.

Arnaud, Catherine; Ehlinger, Virginie; Delobel, Malika; Klapouszczak, Dana; Perra, Oliver; Hensey, Owen; Neubauer, David; Hollody, Katalin; Virella, Daniel; Rackauskaite, Gija mfl.. 2021, Frontiers in Neurology. PORTUGAL, KUL, HELLAS, PT, LATVIA, VESTFOLD, SLOVENIA, NTNU, TLSE3, IRLAND, TQUOB, UGA, SA, ET, ÅRHUSSYKE, SUZ, CHUT, UoEAVitenskapelig artikkel

Access to Intrathecal Baclofen Treatment for Children with Cerebral Palsy in European Countries: An SCPE Survey Reveals Important Differences .

Himmelmann, Kate; Pahlman, Magnus; Andersen, Guro Lillemoen; Vik, Torstein; Virella, Daniel; Horridge, Karen; Neubauer, David; Arnaud, Catherine; Rackauskaite, Gija; De la Cruz, Javier. 2020, Neuropediatrics. PORTUGAL, DSBU, SAHLGREN, ÅRHUSSYKE, SLOVENIA, VESTFOLD, NTNU, ELEMADRID, STORBRITAN, TLSE3, CHUT, SAVitenskapelig artikkel

The Origin of the Cerebral Palsies: Contribution of Population-Based Neuroimaging Data. .

Horber, Veronka; Sellier, Elodie; Horridge, Karen; Rackauskaite, Gija; Andersen, Guro Lillemoen; Virella, Daniel; Ortibus, Els; Dakovic, Ivana; Hensey, Owen; Radšel, Anja mfl.. 2020, Neuropediatrics. UHT, PORTUGAL, DSBU, HELLAS, VESTFOLD, SLOVENIA, STORBRITAN, TLSE3, SPANIA, IRLAND, UGA, SA, CHU, UZLEUVEN, ÅRHUSSYKE, SUZVitenskapelig artikkel

How can data from the surveillance of cerebral palsy in Europe be useful for supporting health policies?

Hollung, Sandra Julsen; Lanzoni, Monica; Delobel, Malika; Ehlinger, Virginie; Kinsner‐Ovaskainen, Agnieszka; Himmelmann, Kate; Platt, Mary Jane; Arnaud, Catherine. 2019, Developmental Medicine & Child Neurology. INSERM, VESTFOLD, NTNU, JRC, UoEA, GuSammendrag/abstract

Decreasing prevalence in cerebral palsy: a multi-site European population-based study, 1980 to 2003 .

Sellier, Elodie; Platt, Mary Jane; Andersen, Guro Lillemoen; Krägeloh-Mann, Ingeborg; De la Cruz, Javier; Cans, Christine. 2016, Developmental Medicine & Child Neurology. VESTFOLD, STORBRITAN, SPANIA, TYSKLAND, FRANKRIKEVitenskapelig artikkel
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