Cristin-prosjekt-ID: 675677
Sist endret: 16. september 2019 14:15

Cristin-prosjekt-ID: 675677
Sist endret: 16. september 2019 14:15
Prosjekt

CiTPro The Citizens Project: Everyday Citizenship for Persons in Vulnerable Situations

prosjektleder

Ruth Louise Bartlett
ved Fakultet for helsefag ved VID vitenskapelige høgskole

prosjekteier / koordinerende forskningsansvarlig enhet

  • Fakultet for helsefag ved VID vitenskapelige høgskole

Klassifisering

Vitenskapsdisipliner

Samfunnsvitenskap

Emneord

Aldersdemens • Critical Disability Studies • Statsborgerskap

HRCS-helsekategori

  • Nevrologisk
  • Generell helserelevans

HRCS-forskningsaktivitet

  • 1.4 Metodologi og målinger
  • 8 Helse- og sosialtjenesteforskning
  • 8.1 Organisering og levering av tjenester
  • 7.3 Håndtering og beslutningstaking
  • 8.3 Politikk, etikk og god vitenskapelig praksis

Kategorier

Prosjektkategori

  • Internt prosjekt
  • Anvendt forskning
  • Faglig utviklingsarbeid
  • Doktorgradsprosjekt

Tidsramme

Aktivt
Start: 1. november 2019 Slutt: 30. november 2023

Beskrivelse Beskrivelse

Tittel

CiTPro The Citizens Project: Everyday Citizenship for Persons in Vulnerable Situations

Populærvitenskapelig sammendrag

Citizenship is a critical concept for building future societies characterized by non-discrimination and equality. It has certainly become a core consideration in understanding and responding to the experiences of people with dementia, and adults with other disabilities, and profound disability. 

Citizenship is typically associated with politics or civic life.  However, in this project, we will examine and describe everyday citizenship in not only the (1) civic arena but three other arenas of importance, these are (2) cultural, (3) religious/existential/ spiritual and (4) social.  So four arenas in total.  

There are countless stories of persons with dementia having problems when out, because others do not understand or ‘see’ their disability (see, for example, the Dementia Diaries website).  Equally troubling, is that persons with intellectual disabilities can face harassment and abuse when out and about in their local communities.  CitPro will involve training tomorrow’s practitioners and researchers to understand and recognise the concept of ‘everyday citizenship’ in the context of persons with disabilities.

Our intention with CitPro is to define and discuss ‘everyday citizenship’ based on the expressive and existential citizenship of adults with a disability, as defined by the Convention of the Rights of Persons with Disabilities, in a range of vulnerable situations.  We will do this through various channels, including research articles, educational materials, and international symposiums. 

 

Vitenskapelig sammendrag

The primary objective of the Citizens Project (CitPro) is to enhance the capacity  and international orientation of three existing research groups in VID - Tjenestentvikling og kvalitet i eldreomsorgen (Service development for older persons), Medborgerskap (Citizenship), and Eksistenforsk (existential perspectives and existential competence in professional practice) - through a focus on everyday citizenship for persons in vulnerable situations.  Specifically, the idea is used as a thematic ‘apex’ to bridge a range of activities (see below) within and across these cognate groups.  

Our secondary objective is to advance scientific knowledge in collaboration with community partners by focusing specifically on vulnerability and citizenship through a range of activities (see methods section below). We will engage students from various master programs including bachelor program social education (vernepleie) and service development for older people, over the four years to:

1. Organize two international symposiums, one on the topic of ‘Everyday Citizenships for Persons in Vulnerable Situations’ to which we would invite guest speakers from the Global South, and a second on ‘Inclusive research methods’ to which we would invite guest speakers from the Nordic countries;

2. Explore what ‘everyday citizenship’ means to individuals in various vulnerable situations, through four creative craft workshops in Oslo.  We want to involve persons with disabilities in CitPro and the arts – doing something together - are a potentially effective way of achieving this;

3. Investigate reported cases of everyday citizenships for persons in vulnerable situations, and translate these into case studies and learning materials to use in educational curricula;  

4. Create and share a 10 ECTS masters level course on ‘Everyday Citizenships for Persons in Vulnerable Situations’ using Canvas Commons and therein implement the lens of everyday citizenship in VID´s educational programme. The course will be derived from existing materials and data gathered for the CiTPro project.  

5. Create a 5 ECTS research course on inclusive research methods and further develop everyday citizenship as a research topic.  Method innovation regarding citizens in vulnerable situations and especially those who have non-verbal communication (participatory and inclusive research practices). The course will be designed to educate and train PhD-students, researchers, service users and service providers to engage in inclusive research methods with persons with cognitive and profound disabilities;

6. Establish a CitPro reading club to engage with and discuss assorted works related to ‘everyday citizenship for persons in vulnerable situations’ e.g. citizenship and disability studies, postcolonial, posthumanist and feminist readings;

7. Create a detailed writing plan and prepare research papers, a fundable bid, and an edited book on citizenship for persons in vulnerable situations: theory and practice;

8. Produce a podcast series alongside these activities to educate the general public on the CRPD and UN-sustainability goals.  A range of topics and dilemmas arising from CitPro will be discussed by a variety of speakers.

To fulfil these objectives we will establish an international team of collaborators

Metode

We will adopt a participatory approach and aim to promote citizenship in practice.  Our plan is to involve community partners in the development of novel methodologies and include people with disabilities in the research process and related events. 

Building on the expertise within the team and current trends within the fields of dementia and disability studies, we plan to review and experiment with the following research methods with and for persons with dementia and cognitive disabilities: (1) arts-based methods (2) research circles and (3) ‘go along’ walking interviews.

1) Arts-based methods are increasingly used in social research to engage people who maybe reticent or unable to express themselves verbally.  Arts-based methods are interactive and typically involve a creative process such as painting, stitching, or collage-making.  For example, Bartlett used arts-based methods in her study about campaigning and participants with dementia made protest banners. Our plan in CitPro is to organize four creative craft workshops, in collaboration with community partners and evaluate the strengths and limitations of this method for engaging people with advanced dementia and other profound disabilities, while at the same time examine the meaning of ‘everyday cultural citizenship’ to persons with disabilities.

2) Research circles is a method where researchers, service users and service providers meet regularly over a period of time. This method is slow research and valuable for establishing data together with persons with disabilities. Research circles give people the opportunity to get to know one another and build trust in a supportive environment. The topic in each session will relate to participation in local community. The research circle will build on experiences from similar research designs and develop the method further by a stronger focus on how services can support everyday political and existential/religious citizenship in local communities.

3) ‘Go-along’ or walking interviews, when the researcher travels or walks alongside someone and asks questions in a dialogue, are an increasingly popular way of eliciting data from people with disabilities.  Bartlett used this method in her latest study and noticed that people with dementia participated much more fully in the walking interviews, than in the sit down interviews with family members.  However, it remains an underdeveloped and underutilized research tool with people with disabilities.  Our intention, therefore, is to review and discuss published work related to this method, and develop protocols and guidance for researchers to use in collaboration with community partners. 

Due to the richness and complexity of this project, we hope to identify new issues of research ethics, and develop the idea of creative voices.  

To ensure this happens, a course in research ethics will be arranged for all researchers and stakeholders in collaboration with community partners.  In addition, any ethical dilemmas we encounter during CitPro will be documented and discussed by the team and relevant stakeholders. 

Utstyr

In terms of resources, 

Ruth Bartlett and Inger-Marie Lid are co-leaders of the CiT Pro project. 

We will recruit to the following positions by May 2020:

1) A post-doctoral fellow: this person will work full-time on CitPro; responsibilities will include, organising the international symposium, preparing conceptual and methodological papers and chapters for publication, and working with the applicants to develop fundable research bids.

2) PhD scholarship: this person will work on a doctoral project related to the topic of everyday citizenship for persons with a disability.  They will spend 25% of their time assisting the applicants with a literature review and innovative inclusion work, such as the creative craft workshop.

3) Masters student (30 hours) to conduct a literature reviwe and other desktop research. 

Materials for the creative craft workshop will be sourced from our community partners. All the recording equipment needed for data collection will be provided with project funds. 

prosjektdeltakere

prosjektleder
Aktiv cristin-person

Ruth Louise Bartlett

  • Tilknyttet:
    Prosjektleder
    ved Fakultet for helsefag ved VID vitenskapelige høgskole
Aktiv cristin-person

Inger Marie Lid

  • Tilknyttet:
    Lokalt ansvarlig
    ved Fakultet for helsefag ved VID vitenskapelige høgskole
Aktiv cristin-person

Oddgeir Arne Synnes

  • Tilknyttet:
    Prosjektdeltaker
    ved Senter for diakoni og profesjonell praksis ved VID vitenskapelige høgskole
Aktiv cristin-person

Kirsten Jæger Fjetland

  • Tilknyttet:
    Prosjektdeltaker
    ved Fakultet for helsefag ved VID vitenskapelige høgskole
Aktiv cristin-person

Anita Gjermestad

  • Tilknyttet:
    Prosjektdeltaker
    ved Fakultet for helsefag ved VID vitenskapelige høgskole
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