Cristin-resultat-ID: 1374236
Sist endret: 2. februar 2017, 11:36
NVI-rapporteringsår: 2016
Resultat
Vitenskapelig artikkel
2016

"My cancer is not my deepest concern": life course disruption influencing patient pathways  and health care needs among persons living with  colorectal cancer

Bidragsytere:
  • Anita Salamonsen
  • Mona Anita Kiil
  • Agnete Egilsdatter Kristoffersen
  • Trine Stub og
  • Gro Karine Rosvold Berntsen

Tidsskrift

Patient Preference and Adherence
ISSN 1177-889X
e-ISSN 1177-889X
NVI-nivå 1

Om resultatet

Vitenskapelig artikkel
Publiseringsår: 2016
Volum: 10
Sider: 1591 - 1600
Open Access

Importkilder

Scopus-ID: 2-s2.0-84984998990

Beskrivelse Beskrivelse

Tittel

"My cancer is not my deepest concern": life course disruption influencing patient pathways  and health care needs among persons living with  colorectal cancer

Sammendrag

Background: The concept of “patient pathways” in cancer care is most commonly understood as clinical pathways, operationalized as standardized packages of health care based on guidelines for the condition in question. In this understanding, patient pathways do not address multimorbidity or patient experiences and preferences. This study explored patient pathways understood as the individual and cultural life course, which includes both life and health events. The overall aim was to contribute to supportive and targeted cancer care. Materials and methods: Nine Norwegian patients recently diagnosed with rectal cancer Tumor-Node-Metastasis stage I–III participated in qualitative interviews, five times over 1 year. Five patients later participated in a workshop where they made illustrations of and discussed patient pathways. Results: Patient pathways including both health and life events were illustrated and described as complex and circular. Stress, anxiety, and depression caused by life events had significant disruptive effects and influenced patient-defined health care needs. The participants experienced the Norwegian public health service as focused on hospital-based standardized cancer care. They expressed unmet health care needs in terms of emotional and practical support in their everyday life with cancer, and some turned to complementary and alternative medicine. Conclusion: This study suggests that acknowledging life course disruption before cancer diagnosis may have significant relevance for understanding complex patient pathways and individual health care needs. Approaching patient pathways as individual and socially constructed may contribute important knowledge to support targeted cancer care.

Bidragsytere

Aktiv cristin-person

Anita Salamonsen

  • Tilknyttet:
    Forfatter
    ved NAFKAM ved UiT Norges arktiske universitet

Mona Kiil

Bidragsyterens navn vises på dette resultatet som Mona Anita Kiil
  • Tilknyttet:
    Forfatter
    ved Psykiatri ved UiT Norges arktiske universitet

Agnete Egilsdatter Kristoffersen

  • Tilknyttet:
    Forfatter
    ved NAFKAM ved UiT Norges arktiske universitet

Trine Stub

  • Tilknyttet:
    Forfatter
    ved NAFKAM ved UiT Norges arktiske universitet

Gro Berntsen

Bidragsyterens navn vises på dette resultatet som Gro Karine Rosvold Berntsen
  • Tilknyttet:
    Forfatter
    ved Nasjonalt senter for e-helseforskning ved Universitetssykehuset Nord-Norge HF
  • Tilknyttet:
    Forfatter
    ved NAFKAM ved UiT Norges arktiske universitet
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