Cristin-resultat-ID: 1538968
Sist endret: 14. august 2018 14:36
NVI-rapporteringsår: 2017
Vitenskapelig artikkel

Patient access to electronic health records: Differences across ten countries

  • Anna Essén
  • Isabella Scandurra
  • Reinie Gerrits
  • Gayl Humphrey
  • Monika Alise Johansen
  • Patrick Kiergegaard
  • mfl.


Health Policy and Technology
ISSN 2211-8837
e-ISSN 2211-8845
NVI-nivå 1

Om resultatet

Vitenskapelig artikkel
Publiseringsår: 2018
Publisert online: 2017
Trykket: 2018
Volum: 7
Hefte: 1
Sider: 44 - 56


Scopus-ID: 2-s2.0-85043591646

Beskrivelse Beskrivelse


Patient access to electronic health records: Differences across ten countries


Objectives Patient-accessible electronic health records (PAEHRs) are being implemented at international scale. Comparing policies and systems could allow countries to learn from each other to address global and nation-specific challenges. We compare national PAEHR policy (hard and soft regulation) and services in 10 countries. Methods PAEHR policy and system documentation was gathered from Australia, Denmark, Estonia, Finland, France, the Netherlands, New Zealand, Norway, Sweden and the United States. A basic analytic model for policy analysis was used to delimit our focus to policy content, followed by an inductive thematic analysis across countries, in which we clustered initial themes into a set of categories of PAEHR service “approaches” related to three specific content areas. Results Although all 10 countries ensured some patient rights to access medical records, policies and systems were highly variable, as were the technological processes arising from these. In particular, three policy areas showed great variability. Depending upon country of origin, a patient would encounter differences in: login procedures (security), access to own and other patients’ data during adolescence (user rights), and types of medical data made available to the patient (data sets). Conclusions Individuals encounter very different access rights to their medical data depending on where they live. Countries may be able to develop improved policies by examining how other nations have solved common problems. Harmonizing policies is also an initial step likely to be needed before cross-national PAEHRs could be possible.


Anna Essén

  • Tilknyttet:
    ved Handelshögskolan i Stockholm
  • Tilknyttet:
    ved Karolinska Institutet

Isabella Scandurra

  • Tilknyttet:
    ved Sverige

Reinie Gerrits

  • Tilknyttet:
    ved Universiteit van Amsterdam

Gayl Humphrey

  • Tilknyttet:
    ved The University of Auckland

Monika Alise Johansen

  • Tilknyttet:
    ved Nasjonalt senter for e-helseforskning ved Universitetssykehuset Nord-Norge HF
  • Tilknyttet:
    ved Telemedisin og e-helse ved UiT Norges arktiske universitet
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