Cristin-resultat-ID: 1538968
Sist endret: 14. august 2018 14:36
NVI-rapporteringsår: 2017
Resultat
Vitenskapelig artikkel
2018

Patient access to electronic health records: Differences across ten countries

Bidragsytere:
  • Anna Essén
  • Isabella Scandurra
  • Reinie Gerrits
  • Gayl Humphrey
  • Monika Alise Johansen
  • Patrick Kiergegaard
  • mfl.

Tidsskrift

Health Policy and Technology
ISSN 2211-8837
e-ISSN 2211-8845
NVI-nivå 1

Om resultatet

Vitenskapelig artikkel
Publiseringsår: 2018
Publisert online i 2017
Trykket i 2018
Volum: 7
Hefte: 1
Side(r):
44
-
56

Importkilder

Scopus-ID: 2-s2.0-85043591646

Beskrivelse Beskrivelse

Tittel

Patient access to electronic health records: Differences across ten countries

Sammendrag

Objectives Patient-accessible electronic health records (PAEHRs) are being implemented at international scale. Comparing policies and systems could allow countries to learn from each other to address global and nation-specific challenges. We compare national PAEHR policy (hard and soft regulation) and services in 10 countries. Methods PAEHR policy and system documentation was gathered from Australia, Denmark, Estonia, Finland, France, the Netherlands, New Zealand, Norway, Sweden and the United States. A basic analytic model for policy analysis was used to delimit our focus to policy content, followed by an inductive thematic analysis across countries, in which we clustered initial themes into a set of categories of PAEHR service “approaches” related to three specific content areas. Results Although all 10 countries ensured some patient rights to access medical records, policies and systems were highly variable, as were the technological processes arising from these. In particular, three policy areas showed great variability. Depending upon country of origin, a patient would encounter differences in: login procedures (security), access to own and other patients’ data during adolescence (user rights), and types of medical data made available to the patient (data sets). Conclusions Individuals encounter very different access rights to their medical data depending on where they live. Countries may be able to develop improved policies by examining how other nations have solved common problems. Harmonizing policies is also an initial step likely to be needed before cross-national PAEHRs could be possible.

Bidragsytere

Anna Essén

  • Tilknyttet:
    Forfatter
    ved Handelshögskolan i Stockholm
  • Tilknyttet:
    Forfatter
    ved Karolinska Institutet

Isabella Scandurra

  • Tilknyttet:
    Forfatter
    ved Sverige

Reinie Gerrits

  • Tilknyttet:
    Forfatter
    ved Universiteit van Amsterdam

Gayl Humphrey

  • Tilknyttet:
    Forfatter
    ved The University of Auckland

Monika Alise Johansen

  • Tilknyttet:
    Forfatter
    ved Nasjonalt senter for e-helseforskning ved Universitetssykehuset Nord-Norge HF
  • Tilknyttet:
    Forfatter
    ved Telemedisin og e-helse ved UiT Norges arktiske universitet
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