Cristin-resultat-ID: 1596790
Sist endret: 24. september 2019 10:47
NVI-rapporteringsår: 2018
Resultat
Vitenskapelig artikkel
2018

Design and development of a context-aware knowledge-based module for identifying relevant information and information gaps in patients with type 1 diabetes self-collected health data

Bidragsytere:
  • Alain Giordanengo
  • Pinar Øzturk
  • Anne Helen Hansen
  • Eirik Årsand
  • Astrid Grøttland og
  • Gunnar Hartvigsen

Tidsskrift

JMIR Diabetes
ISSN 2371-4379
e-ISSN 2371-4379
NVI-nivå 1

Om resultatet

Vitenskapelig artikkel
Publiseringsår: 2018
Volum: 3:e10431
Hefte: 3
Sider: 1 - 18
Open Access

Finansiering

  • Norges forskningsråd
    Prosjektkode: 247974

Beskrivelse Beskrivelse

Tittel

Design and development of a context-aware knowledge-based module for identifying relevant information and information gaps in patients with type 1 diabetes self-collected health data

Sammendrag

Background: Patients with diabetes use an increasing number of self-management tools in their daily life. However, health institutions rarely use the data generated by these services mainly due to (1) the lack of data reliability, and (2) medical workers spending too much time extracting relevant information from the vast amount of data produced. This work is part of the FullFlow project, which focuses on self-collected health data sharing directly between patients’ tools and EHRs. Objective: The main objective is to design and implement a prototype for extracting relevant information and documenting information gaps from self-collected health data by patients with type 1 diabetes using a context-aware approach. The module should permit (1) clinicians to assess the reliability of the data and to identify issues to discuss with their patients, and (2) patients to understand the implication their lifestyle has on their disease. Methods: The identification of context and the design of the system relied on (1) 2 workshops in which the main author participated, 1 patient with type 1 diabetes, and 1 clinician, and (2) a co-design session involving 5 patients with type 1 diabetes and 4 clinicians including 2 endocrinologists and 2 diabetes nurses. The software implementation followed a hybrid agile and waterfall approach. The testing relied on load, and black and white box methods. Results: We created a context-aware knowledge-based module able to (1) detect potential errors, and information gaps from the self-collected health data, (2) pinpoint relevant data and potential causes of noticeable medical events, and (3) recommend actions to follow to improve the reliability of the data issues and medical issues to be discussed with clinicians. The module uses a reasoning engine following a hypothesize-and-test strategy built on a knowledge base and using contextual information. The knowledge base contains hypotheses, rules, and plans we defined with the input of medical experts. We identified a large set of contextual information: emotional state (eg, preferences, mood) of patients and medical workers, their relationship, their metadata (eg, age, medical specialty), the time and location of usage of the system, patient-collected data (eg, blood glucose, basal-bolus insulin), patients’ goals and medical standards (eg, insulin sensitivity factor, in range values). Demonstrating the usage of the system revealed that (1) participants perceived the system as useful and relevant for consultation, and (2) the system uses less than 30 milliseconds to treat new cases. Conclusions: Using a knowledge-based system to identify anomalies concerning the reliability of patients’ self-collected health data to provide information on potential information gaps and to propose relevant medical subjects to discuss or actions to follow could ease the introduction of self-collected health data into consultation. Combining this reasoning engine and the system of the FullFlow project could improve the diagnostic process in health care.

Bidragsytere

Alain Giordanengo

  • Tilknyttet:
    Forfatter
    ved Institutt for informatikk ved UiT Norges arktiske universitet
  • Tilknyttet:
    Forfatter
    ved Nasjonalt senter for e-helseforskning ved Universitetssykehuset Nord-Norge HF

Pinar Øzturk

  • Tilknyttet:
    Forfatter
    ved Institutt for datateknologi og informatikk ved Norges teknisk-naturvitenskapelige universitet

Anne Helen Hansen

  • Tilknyttet:
    Forfatter
    ved Allmennmedisin ved UiT Norges arktiske universitet
  • Tilknyttet:
    Forfatter
    ved Kvalitets- og utviklingssenteret ved Universitetssykehuset Nord-Norge HF

Eirik Årsand

  • Tilknyttet:
    Forfatter
    ved Nasjonalt senter for e-helseforskning ved Universitetssykehuset Nord-Norge HF
  • Tilknyttet:
    Forfatter
    ved Telemedisin og e-helse ved UiT Norges arktiske universitet

Astrid Grøttland

  • Tilknyttet:
    Forfatter
    ved Nasjonalt senter for e-helseforskning ved Universitetssykehuset Nord-Norge HF
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