Cristin-resultat-ID: 1717943
Sist endret: 28. januar 2020 11:38
NVI-rapporteringsår: 2019
Resultat
Vitenskapelig artikkel
2019

Supporting carers: health care professionals in need of system improvements and education - a qualitative study

Bidragsytere:
  • Ingebrigt Røen
  • Hans Stifoss-Hanssen
  • Gunn Grande
  • Stein Kaasa
  • Kari Sand og
  • Anne Kari Knudsen

Tidsskrift

BMC Palliative Care
ISSN 1472-684X
e-ISSN 1472-684X
NVI-nivå 1

Om resultatet

Vitenskapelig artikkel
Publiseringsår: 2019
Publisert online: 2019
Volum: 18
Hefte: 1
Sider: 58 - 68
Open Access

Importkilder

Scopus-ID: 2-s2.0-85069523268

Klassifisering

Vitenskapsdisipliner

Onkologi

Emneord

Omsorgsgivere • Integrasjon • Helsepersonell • Palliasjon • Behovsprøving • Familiestøtte • Oncologi

HRCS

  • Helsekategori: 2 - Kreft
    Aktivitet: 7.2 - Omsorg ved livets slutt

Beskrivelse Beskrivelse

Tittel

Supporting carers: health care professionals in need of system improvements and education - a qualitative study

Sammendrag

Abstract Background: Health care professionals should prevent and relieve suffering in carers of patients with advanced cancer. Despite known positive effects of systematic carer support, carers still do not receive sufficient support. Carers have reported to be less satisfied with coordination of care and involvement of the family in treatment and care decisions than patients. In a rural district of Mid-Norway, cancer palliative care services across specialist and community care were developed. Participants’ experiences and opinions were investigated as part of this development process. Methods: The aim of this qualitative study was to explore and describe health care professionals’ experiences with carer support from their own perspective. Data were collected in focus groups. Purposeful sampling guided the inclusion. Six groups were formed with 21 professionals. The discussions were audio-recorded, transcribed, and analyzed using systematic text condensation. Results: In the analyzis of the focus group discussions, ten categories emerged from the exploration of health care professionals’ carer support, assessment of needs, and factors hampering carer support: 1) dependent on profession, role, and context, 2) personal relationship, 3) personal skills and competence, 4) adjusted to the stage of the disease, 5) informal assessment of carers’ needs, 6) lack of education 7) lack of systems for carer consultations, 8) lack of systems for documentation, 9) lack of systems for involving GPs, and 10) lack of systematic spiritual care. Conclusions: Health care professionals built a personal relationship with the carers as early as possible, to facilitate carer support throughout the disease trajectory. Systematic carer support was hampered by lack of education and system insufficiencies. Organizational changes were needed, including 1) education in carer support, communication, and spiritual care, 2) use of standardized care pathways, including systematic carer needs assessment, 3) systematic involvement of general practitioners, and 4) a system for documentation of clinical work with carers. Keywords: Health care professionals, Oncology, Palliative care, Family carers, Carer support, Needs assessment, Integration

Bidragsytere

Ingebrigt Røen

  • Tilknyttet:
    Forfatter
    ved Institutt for klinisk og molekylær medisin ved Norges teknisk-naturvitenskapelige universitet
  • Tilknyttet:
    Forfatter
    ved Sentral stab ved St. Olavs Hospital HF

Hans Stifoss-Hanssen

  • Tilknyttet:
    Forfatter
    ved Senter for diakoni og profesjonell praksis ved VID vitenskapelige høgskole

Gunn Grande

  • Tilknyttet:
    Forfatter
    ved University of Manchester
Aktiv cristin-person

Stein Kaasa

  • Tilknyttet:
    Forfatter
    ved Avdeling for kreftbehandling ved Oslo universitetssykehus HF
  • Tilknyttet:
    Forfatter
    ved Avdeling for kreftbehandling ved Universitetet i Oslo

Kari Sand

  • Tilknyttet:
    Forfatter
    ved Institutt for klinisk og molekylær medisin ved Norges teknisk-naturvitenskapelige universitet
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