Cristin-resultat-ID: 1809818
Sist endret: 6. januar 2021 16:28
NVI-rapporteringsår: 2020
Resultat
Vitenskapelig artikkel
2020

"No one wants you” – a qualitative study on the experiences of receiving rejection from tertiary care pain centres

Bidragsytere:
  • Torunn Hatlen Nøst
  • Mona Stedenfeldt og
  • Aslak Steinsbekk

Tidsskrift

Scandinavian Journal of Pain
ISSN 1877-8860
e-ISSN 1877-8879
NVI-nivå 1

Om resultatet

Vitenskapelig artikkel
Publiseringsår: 2020
Publisert online: 2020

Importkilder

Scopus-ID: 2-s2.0-85085142331

Klassifisering

Vitenskapsdisipliner

Medisinske fag

Emneord

Smerteklinikk • Helsetjenesteforskning • Kronisk smerte

Beskrivelse Beskrivelse

Tittel

"No one wants you” – a qualitative study on the experiences of receiving rejection from tertiary care pain centres

Sammendrag

Background and aims: Four out of 10 referrals to tertiary care pain centres in Norway are not granted pain centre treatment, confirming earlier research on that this group of patients struggle to access the highest standard of care. Still, no study investigating how people with chronic pain experience rejections from pain centres was found. The aim of the study was therefore to investigate how people with chronic pain experience receiving a rejection from tertiary care pain centres after being referred by their general practitioners (GPs). Methods: This was a qualitative study with semi-structured individual interviews with 12 persons, seven men and five women, rejected from the four different pain centres in Norway. The data were analysed thematically using systematic text condensation. Results: The pain centre rejection created strong reactions, partly because the rejection was perceived as a refusal from the health care system as a whole. This was especially so because the pain centre was regarded as the last remaining treatment option, and given the rejection, they were now declined help by the experts in the field. Even though some informants had received an explanation for why they had not been granted pain centre treatment, a prominent experience was that the informants found it difficult to understand why their referral had been rejected given the severity of their pain. The incomprehensibility of the rejection together with a feeling of lack of future treatment options, increased the hopelessness and frustration of their situation and made it challenging to move on and search for help elsewhere. Conclusions: The experiences with the pain centre rejections indicate that the rejection can have grave consequences for each individual in the following months. An improved system for how to handle expectations towards referrals, including prepare for the possibility of rejection and how to follow up a rejection, seems warranted. Implications: Because a pain centre rejection most likely is received by persons in a vulnerable position, there should be available health care services to help them understand the rejections. And furthermore, help them to move from disappointment and hopelessness, towards an experience of empowerment and reorientation, by for instance planning further actions and interventions, and thereby, acknowledge their need for help.

Bidragsytere

Aktiv cristin-person

Torunn Hatlen Nøst

  • Tilknyttet:
    Forfatter
    ved Institutt for psykisk helse ved Norges teknisk-naturvitenskapelige universitet

Mona Stedenfeldt

  • Tilknyttet:
    Forfatter
    ved Klinikk for anestesi og intensivmedisin ved St. Olavs Hospital HF
  • Tilknyttet:
    Forfatter
    ved Institutt for sirkulasjon og bildediagnostikk ved Norges teknisk-naturvitenskapelige universitet
Aktiv cristin-person

Aslak Steinsbekk

  • Tilknyttet:
    Forfatter
    ved Institutt for samfunnsmedisin og sykepleie ved Norges teknisk-naturvitenskapelige universitet
1 - 3 av 3