Cristin-resultat-ID: 1852424
Sist endret: 25. mars 2021, 11:31
NVI-rapporteringsår: 2020
Resultat
Vitenskapelig artikkel
2020

Is health literacy of family carers associated with carer burden, quality of life, and time spent on informal care for older persons living with dementia?

Bidragsytere:
  • Kristin Häikiö
  • Denise Cloutier og
  • Jorun Rugkåsa

Tidsskrift

PLOS ONE
ISSN 1932-6203
e-ISSN 1932-6203
NVI-nivå 1

Om resultatet

Vitenskapelig artikkel
Publiseringsår: 2020
Publisert online: 2020
Sider: 1 - 16
Open Access

Importkilder

Scopus-ID: 2-s2.0-85096814898

Beskrivelse Beskrivelse

Tittel

Is health literacy of family carers associated with carer burden, quality of life, and time spent on informal care for older persons living with dementia?

Sammendrag

Introduction: Family carers are cornerstones in the care of older people living with dementia. Family carers report extensive carer burden, reduced health-related quality of life (HRQoL), and extensive time spent on informal care (Time). Health literacy (HL) is a concept associated with people’s ability to access health services, and navigate the healthcare system. This study’s aim was to investigate HL among family carers, and investigate the associations between HL and carer burden, HRQoL, and Time spent on informal care. Method: We designed a self-administered survey comprising validated instruments, including the Health Literacy Scale (HLS-N-Q12) to measure HL, Relative Stress Scale (RSS) to measure carer burden, the EQ-5D-5L instrument to measure HRQoL, and some modified questions from the Resource Utilization in Dementia (RUD) questionnaire to measure time spent on informal care (Time). Descriptive analysis in addition to bivariate and multiple linear regressions were undertaken. In multiple linear regression analysis, we used HL as the independent variable to predict the outcomes (carer burden, HRQoL, Time). Analyses were adjusted for the effects of explanatory independent variables: age, gender, education levels, urban residency, having worked as health personnel, caring for someone with severe/mild dementia, and being born abroad. Findings: In a non-probability sample of 188 family carers from across Norway, most of them female and over the age of 60, we found high levels of HL. In the bivariate analysis, carer burden and HRQoL (EQvalue) showed significant associations with HL. In the multiple regression analyses, HL was statistically significantly associated with carer burden (B = -0.18 CI:-0.33,-0.02 p = 0.02), HRQoL (EQvalue: B = 0.003 with 95% CI: 0.001, 0.006 p = 0.04), and Time (B = -0.03 with 95% CI: -0.06, 0.000, p = 0.046), after adjusting for the effect of independent variables. Conclusion: This is one of the first studies to investigate the associations between HL and different outcomes for family carers of older people living with dementia. Additional research into the associations identified here is needed to further develop our understanding of how to support family carers in their roles. Targeted support that increases family carers’ HL may have potential to enhance their ability to provide sustainable care over time.

Bidragsytere

Aktiv cristin-person

Kristin Häikiö

  • Tilknyttet:
    Forfatter
    ved Institutt for sykepleie og helsefremmende arbeid ved OsloMet - storbyuniversitetet
  • Tilknyttet:
    Forfatter
    ved Helsetjenesteforskning (HØKH) ved Akershus universitetssykehus HF

Denise Cloutier

  • Tilknyttet:
    Forfatter
    ved University of Victoria
Aktiv cristin-person

Jorun Rugkåsa

  • Tilknyttet:
    Forfatter
    ved Helsetjenesteforskning (HØKH) ved Akershus universitetssykehus HF
  • Tilknyttet:
    Forfatter
    ved Senter for omsorgsforskning Sør ved Universitetet i Sørøst-Norge
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