Cristin-resultat-ID: 1892137
Sist endret: 25. mars 2021 10:22
Resultat
Vitenskapelig artikkel
2020

LIVE@Home.Path--innovating the clinical pathway for home-dwelling people with dementia and their caregivers: Study protocol for a mixed-method, stepped-wedge, randomized controlled trial

Bidragsytere:
  • Bettina Husebø
  • Heather Allore
  • Wilco Achterberg
  • Renira Corinne Angeles
  • Clive Ballard
  • Frøydis Kristine Bruvik
  • mfl.

Tidsskrift

Trials
ISSN 1745-6215
e-ISSN 1745-6215
NVI-nivå 1

Om resultatet

Vitenskapelig artikkel
Publiseringsår: 2020
Publisert online: 2020
Volum: 21:510
Sider: 1 - 16
Open Access

Importkilder

Scopus-ID: 2-s2.0-85086356576

Beskrivelse Beskrivelse

Tittel

LIVE@Home.Path--innovating the clinical pathway for home-dwelling people with dementia and their caregivers: Study protocol for a mixed-method, stepped-wedge, randomized controlled trial

Sammendrag

Background The global health challenge of dementia is exceptional in size, cost and impact. It is the only top ten cause of death that cannot be prevented, cured or substantially slowed, leaving disease management, caregiver support and service innovation as the main targets for reduction of disease burden. Institutionalization of persons with dementia is common in western countries, despite patients preferring to live longer at home, supported by caregivers. Such complex health challenges warrant multicomponent interventions thoroughly implemented in daily clinical practice. This article describes the rationale, development, feasibility testing and implementation process of the LIVE@Home.Path trial. Methods The LIVE@Home.Path trial is a 2-year, multicenter, mixed-method, stepped-wedge randomized controlled trial, aiming to include 315 dyads of home-dwelling people with dementia and their caregivers, recruited from 3 municipalities in Norway. The stepped-wedge randomization implies that all dyads receive the intervention, but the timing is determined by randomization. The control group constitutes the dyads waiting for the intervention. The multicomponent intervention was developed in collaboration with user-representatives, researchers and stakeholders to meet the requirements from the national Dementia Plan 2020. During the 6-month intervention period, the participants will be allocated to a municipal coordinator, the core feature of the intervention, responsible for regular contact with the dyads to facilitate L: Learning, I: Innovation, V: Volunteering and E: Empowerment (LIVE). The primary outcome is resource utilization. This is measured by the Resource Utilization in Dementia (RUD) instrument and the Relative Stress Scale (RSS), reflecting that resource utilization is more than the actual time required for caring but also how burdensome the task is experienced by the caregiver. Discussion We expect the implementation of LIVE to lead to a pathway for dementia treatment and care which is cost-effective, compared to treatment as usual, and will support high-quality independent living, at home.

Bidragsytere

Bettina Elisabeth Franziska Husebø

Bidragsyterens navn vises på dette resultatet som Bettina Husebø
  • Tilknyttet:
    Forfatter
    ved Bergen kommune
  • Tilknyttet:
    Forfatter
    ved Institutt for global helse og samfunnsmedisin ved Universitetet i Bergen

Heather Allore

  • Tilknyttet:
    Forfatter
    ved Yale University

Wilco Achterberg

  • Tilknyttet:
    Forfatter
    ved Leids Universitair Medisch Centrum

Renira Corinne Angeles

  • Tilknyttet:
    Forfatter
    ved NORCE Samfunn ved NORCE Norwegian Research Centre AS

Clive Ballard

  • Tilknyttet:
    Forfatter
    ved University of Exeter
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