Cristin-resultat-ID: 918597
Sist endret: 11. desember 2012 15:54
NVI-rapporteringsår: 2012
Resultat
Vitenskapelig artikkel
2012

Choosing to live with home dialysis-patients' experiences and potential for telemedicine support: a qualitative study

Bidragsytere:
  • Ellen Rygh
  • Eli Arild
  • Elin Johnsen og
  • Markus Rumpsfeld

Tidsskrift

BMC Nephrology
ISSN 1471-2369
e-ISSN 1471-2369
NVI-nivå 1

Om resultatet

Vitenskapelig artikkel
Publiseringsår: 2012
Volum: 13
Hefte: 13
Open Access

Importkilder

Isi-ID: 000304375800001

Beskrivelse Beskrivelse

Tittel

Choosing to live with home dialysis-patients' experiences and potential for telemedicine support: a qualitative study

Sammendrag

Background This study examines the patients' need for information and guidance in the selection of dialysis modality, and in establishing and practicing home dialysis. The study focuses on patients' experiences living with home dialysis, how they master the treatment, and their views on how to optimize communication with health services and the potential of telemedicine. Methods We used an inductive research strategy and conducted semi-structured interviews with eleven patients established in home dialysis. Our focus was the patients' experiences with home dialysis, and our theoretical reference was patients' empowerment through telemedicine solutions. Three informants had home haemodialysis (HHD); eight had peritoneal dialysis (PD), of which three had automated peritoneal dialysis (APD); and five had continuous ambulatory peritoneal dialysis (CAPD). The material comprises all PD-patients in the catchment area capable of being interviewed, and all known HHD-users in Norway at that time. Results All of the interviewees were satisfied with their choice of home dialysis, and many experienced a normalization of daily life, less dominated by disease. They exhibited considerable self-management skills and did not perceive themselves as ill, but still required very close contact with the hospital staff for communication and follow-up. When choosing a dialysis modality, other patients' experiences were often more influential than advice from specialists. Information concerning the possibility of having HHD, including knowledge of how to access it, was not easily available. Especially those with dialysis machines, both APD and HHD, saw a potential for telemedicine solutions. Conclusions As home dialysis may contribute to a normalization of life less dominated by disease, the treatment should be organized so that the potential for home dialysis can be fully exploited. Pre-dialysis information should be unbiased and include access to other patients' experiences. Telemedicine may potentially facilitate a communication-based follow-up and improve safety within the home setting, making it easier to choose and live with home dialysis.

Bidragsytere

Ellen Rygh

  • Tilknyttet:
    Forfatter
    ved Kvalitets- og utviklingssenteret ved Universitetssykehuset Nord-Norge HF

Eli Arild

  • Tilknyttet:
    Forfatter
    ved Kvalitets- og utviklingssenteret ved Universitetssykehuset Nord-Norge HF

Elin Johnsen

  • Tilknyttet:
    Forfatter
    ved Kvalitets- og utviklingssenteret ved Universitetssykehuset Nord-Norge HF

Markus Rumpsfeld

  • Tilknyttet:
    Forfatter
    ved Medisinsk klinikk ved Universitetssykehuset Nord-Norge HF
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