Cristin-resultat-ID: 982355
Sist endret: 18. oktober 2017, 09:35
Vitenskapelig foredrag

"Living with ME" (mylagic encephalomyelitis - chronic fatigue syndrome); talking about having a long-term illness

  • Kjersti Helene Haarr


Navn på arrangementet: COTEC Congress of Occupational Therapy
Sted: Stockholm
Dato fra: 24. mai 2012
Dato til: 27. mai 2012


Arrangørnavn: COTEC - Council of Occupational Therapists for the European

Om resultatet

Vitenskapelig foredrag
Publiseringsår: 2012

Beskrivelse Beskrivelse


"Living with ME" (mylagic encephalomyelitis - chronic fatigue syndrome); talking about having a long-term illness


Abstract LIVING WITH ME (myalgic encephalomyelitis – chronic fatigue syndrome); a study of how women with ME talk together about having a long-term illness. Studying experiences, my aim is to shed light on the everyday lives of a marginalized group. The research question: how do women with ME mould and maintain their everyday occupations and roles? The scientific starting point is both humanistic and hermeneutic, using a qualitative design. Two focus group-discussions with women (n = 10) from 19 – 64 years old were conducted. The study’s results reflect the integration process that happens through individual’s encounter with her environment. The main issue indicate an ambiguous experience of power which is tested out. Findings suggest that the women cope with social dilemmas by regulating their lives according to their own illness-model. Their ‘action space’ gives the illness a situated expression, which entails being simultaneously confined and excluded. They express clear cultural expectations about exercise, while rest is backed by many intentions. The understanding of illness as relational and situationally conditioned is seen as important for healthcare workers. Further researcher proposed: to explore the content of actions the individual actively does, in order to recover. Key concepts: chronic fatigue syndrome, qualitative method, everyday life, occupations, social disease model.


Aktiv cristin-person

Kjersti Helene Haarr

  • Tilknyttet:
    ved Fakultet for helsefag ved VID vitenskapelige høgskole
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