Protocols to detect and initiate assessment and treatment of dementia in people with intellectual disabilities

Aim : The number of elderly with intellectual disabilities (ID) will increase significantly, and more people with ID will experience dementia in the future. Research shows that in Norway, 8 out of 10 people with ID who are suspected of suffering from dementia are not assessed. The aim of this study is to identifying protocols that should be established in municipal health services to detect and initiate assessment and treatment of dementia in people with ID. Method : Employees representing the municipal health services from all the health regions in Norway participated in a qualitative interview survey. Results : The survey shows lack of implementation of protocols, a lack of knowledge by service providers in identifying early symptoms of dementia, and a lack of involvement by GPs, may be some of the main reasons for the failure to make assessments and for not receiving the appropriate treatment and care. Conclusion : To detect early signs of dementia, a comprehensive and systematic approach should be established and include observation, documentation, information, and intervention. With the correct diagnosis, municipalities will be better prepared to provide appropriate resources, avoid malpractice and reduce constraints for the individual with ID, their relatives, and the health services concerned.