Cristin-resultat-ID: 1922400
Sist endret: 24. november 2021, 14:20
NVI-rapporteringsår: 2021
Resultat
Vitenskapelig artikkel
2021

Good Quality Care for Cancer Patients Dying in Hospitals, but Information Needs Unmet: Bereaved Relatives' Survey within Seven Countries

Bidragsytere:
  • Dagny Renata Faksvåg Haugen
  • Karl Ove Hufthammer
  • Christina Gerlach
  • Katrin Rut Sigurdardottir
  • Marit Irene Tuen Hansen
  • Grace Ting
  • mfl.

Tidsskrift

The Oncologist
ISSN 1083-7159
e-ISSN 1549-490X
NVI-nivå 1

Om resultatet

Vitenskapelig artikkel
Publiseringsår: 2021
Publisert online: 2021
Trykket: 2021
Volum: 26
Hefte: 7
Sider: e1273 - e1284
Open Access

Importkilder

Scopus-ID: 2-s2.0-85108634438

Klassifisering

Vitenskapsdisipliner

Onkologi

Emneord

Etterlatte • Kvalitet i helsetjenesten • Død • Klinisk kommunikasjon • Lindrende behandling • Spørreundersøkelse

Beskrivelse Beskrivelse

Tittel

Good Quality Care for Cancer Patients Dying in Hospitals, but Information Needs Unmet: Bereaved Relatives' Survey within Seven Countries

Sammendrag

Background. Recognized disparities in quality of end-of-life care exist. Our aim was to assess the quality of care for patients dying from cancer, as perceived by bereaved relatives, within hospitals in seven European and South American countries. Materials and Methods. A postbereavement survey was conducted by post, interview, or via tablet in Argentina, Brazil, Uruguay, U.K., Germany, Norway, and Poland. Next of kin to cancer patients were asked to complete the international version of the Care Of the Dying Evaluation (i- CODE) questionnaire 6–8 weeks postbereavement. Primary outcomes were (a) how frequently the deceased patient was treated with dignity and respect, and (b) how well the family member was supported in the patient’s last days of life. Results. Of 1,683 potential participants, 914 i-CODE questionnaires were completed (response rate, 54%). Approximately 94% reported the doctors treated their family member with dignity and respect “always” or “most of the time”; similar responses were given about nursing staff (94%). Additionally, 89% of participants reported they were adequately supported; this was more likely if the patient died on a specialist palliative care unit (odds ratio, 6.3; 95% confidence interval, 2.3–17.8). Although 87% of participants were told their relative was likely to die, only 63% were informed about what to expect during the dying phase. Conclusion. This is the first study assessing quality of care for dying cancer patients from the bereaved relatives’ perspective across several countries on two continents. Our findings suggest many elements of good care were practiced but improvement in communication with relatives of imminently dying patients is needed.

Bidragsytere

Dagny Renata Faksvåg Haugen

  • Tilknyttet:
    Forfatter
    ved Klinisk institutt 1 ved Universitetet i Bergen
  • Tilknyttet:
    Forfatter
    ved Kompetansesenter i lindrende behandling ved Helse Bergen HF - Haukeland universitetssykehus
Aktiv cristin-person

Karl Ove Hufthammer

  • Tilknyttet:
    Forfatter
    ved Kompetansesenter for klinisk forskning ved Helse Bergen HF - Haukeland universitetssykehus

Christina Gerlach

  • Tilknyttet:
    Forfatter
    ved Johannes Gutenberg-Universität Mainz

Katrin Rut Sigurdardottir

  • Tilknyttet:
    Forfatter
    ved Kompetansesenter i lindrende behandling ved Helse Bergen HF - Haukeland universitetssykehus

Marit Irene Tuen Hansen

  • Tilknyttet:
    Forfatter
    ved Klinisk institutt 1 ved Universitetet i Bergen
  • Tilknyttet:
    Forfatter
    ved Kompetansesenter i lindrende behandling ved Helse Bergen HF - Haukeland universitetssykehus
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