Cristin-prosjekt-ID: 541980
Registrert av: REK Sist endret: 15. mars 2024, 13:03

Cristin-prosjekt-ID: 541980
Registrert av: REK Sist endret: 15. mars 2024, 13:03
Prosjekt

Developing and testing an assessment tool for post-stroke fatigue

prosjektleder

Anners Lerdal
ved Lovisenberg Diakonale Sykehus

prosjekteier / koordinerende forskningsansvarlig enhet

  • Lovisenberg Diakonale Sykehus

Godkjenninger

  • Regionale komitéer for medisinsk og helsefaglig forskningsetikk (REK) - 2016/1741

Klassifisering

Vitenskapsdisipliner

Helsefag • Sykepleievitenskap

Emneord

Slag rehabilitering oppfølgning • Hjerneslag • Assessment tool • Fatigue

HRCS-helsekategori

  • Hjerneslag

HRCS-forskningsaktivitet

  • 2.3 Psykologiske, sosiale og økonomiske faktorer
  • 7 Håndtering av sykdommer og tilstander
  • 2.4 Overvåking og utbredelse

Kategorier

Prosjektkategori

  • Bidragsprosjekt
  • Doktorgradsprosjekt

Helseprosjekttype

Annet studium

Tidsramme

Aktivt
Start: 1. januar 2017 Slutt: 31. desember 2025

Beskrivelse Beskrivelse

Tittel

Developing and testing an assessment tool for post-stroke fatigue

Vitenskapelig sammendrag

Post-stroke fatigue (PSF) is the most common symptom three months after stroke. This disabling condition has a major negative influence on patients’ rehabilitation, functioning and return to work. In aprevious longitudinal study, we showed that fatigue in the acute-phase following stroke is anindependent risk factor for poorer physical health 18 months later. Other studies have shown that PSFpredicts lower quality of life and higher mortality. PSF is a subjective phenomenon, and the diagnosis isbased on patient self-report. However, no patient-reported outcome measure (PROM) exists thatconsiders the complex nature of PSF, which impairs the ability of health professionals and researchersto adequately diagnose PSF. Further, none of the currently used PROMs was specifically developed todiagnose fatigue in stroke patients. For both research and clinical purposes, it is therefore critical todevelop a valid and reliable PROM that can support the clinical diagnosis of PSF:1) In clinical settings, the routine use of a PSF PROM and a comprehensive assessment of eachpatient’s individual fatigue profile could facilitate early intervention and treatment in the acute phaseafter stroke and serve as a treatment evaluation throughout specialized care and during rehabilitation.Use of PROMs is critical to improving symptom control, increasing supportive care measures andoptimizing patient satisfaction and health outcomes.2) In PSF research, one of the major challenges is to accurately identify patients with PSF and classifyits different types. A novel and specific tool could provide a platform for further insight into the diseasecharacteristics and facilitate the development of new and tailored treatments.

The overall aim of this study is to develop a valid PROM that can support the clinical diagnosis of PSF.

To achieve this overall aim, this study has two specific objectives:

1) In collaboration with users (both stroke survivors and health professionals), develop a PROM forassessing and diagnosing PSF. The PROM will include following domains: characteristics, severity,interference and management.

2) Evaluate the validity of the developed PSF PROM in a stroke population.

Metode

The study was a sequential exploratory mixed-methods design consisting of:

1) reveiew of the most used instrument used to measure fatigue in stroke patients,

2) individual interviews and focus group interviews with stroke survivors and health professionals to identfty the best items to be included in a post-stroke fatigue measure, includig develping a theoretical definition of post-stroke fatigue and a theoretical framework.

3) to test a list of items in a cross-sectional study in a sample of stroke survivors and assess the psychometric properties and reducing number of items based on Rasch analysis.

Utstyr

n.a.

Tittel

Utvikling av et klinisk verktøy for kartlegging av utmattelse hos slagpasienter

Vitenskapelig sammendrag

Post-stroke fatigue (PSF) is the most common symptom three months after stroke. This disabling condition has a major negative influence on patients’ rehabilitation, functioning and return to work. In aprevious longitudinal study, we showed that fatigue in the acute-phase following stroke is anindependent risk factor for poorer physical health 18 months later. Other studies have shown that PSFpredicts lower quality of life and higher mortality. PSF is a subjective phenomenon, and the diagnosis isbased on patient self-report. However, no patient-reported outcome measure (PROM) exists thatconsiders the complex nature of PSF, which impairs the ability of health professionals and researchersto adequately diagnose PSF. Further, none of the currently used PROMs was specifically developed todiagnose fatigue in stroke patients. For both research and clinical purposes, it is therefore critical todevelop a valid and reliable PROM that can support the clinical diagnosis of PSF:1) In clinical settings, the routine use of a PSF PROM and a comprehensive assessment of eachpatient’s individual fatigue profile could facilitate early intervention and treatment in the acute phaseafter stroke and serve as a treatment evaluation throughout specialized care and during rehabilitation.Use of PROMs is critical to improving symptom control, increasing supportive care measures andoptimizing patient satisfaction and health outcomes.2) In PSF research, one of the major challenges is to accurately identify patients with PSF and classifyits different types. A novel and specific tool could provide a platform for further insight into the diseasecharacteristics and facilitate the development of new and tailored treatments.

The overall aim of this study is to develop a valid PROM that can support the clinical diagnosis of PSF.

To achieve this overall aim, this study has two specific objectives:

1) In collaboration with users (both stroke survivors and health professionals), develop a PROM forassessing and diagnosing PSF. The PROM will include following domains: characteristics, severity,interference and management.

2) Evaluate the validity of the developed PSF PROM in a stroke population.

Metode

The study was a sequential exploratory mixed-methods design consisting of:

1) reveiew of the most used instrument used to measure fatigue in stroke patients,

2) individual interviews and focus group interviews with stroke survivors and health professionals to identfty the best items to be included in a post-stroke fatigue measure, includig develping a theoretical definition of post-stroke fatigue and a theoretical framework.

3) to test a list of items in a cross-sectional study in a sample of stroke survivors and assess the psychometric properties and reducing number of items based on Rasch analysis.

Utstyr

n.a.

prosjektdeltakere

prosjektleder

Anners Lerdal

  • Tilknyttet:
    Prosjektleder
    ved Lovisenberg Diakonale Sykehus

Anders Kottorp

  • Tilknyttet:
    Prosjektdeltaker
    ved Malmö universitet
Aktiv cristin-person

Ingrid Johansen Skogestad

  • Tilknyttet:
    Prosjektdeltaker
    ved Lovisenberg Diakonale Sykehus

Bent Indredavik

  • Tilknyttet:
    Prosjektdeltaker
    ved St. Olavs Hospital HF
  • Tilknyttet:
    Prosjektdeltaker
    ved Norges teknisk-naturvitenskapelige universitet

Marit Kirkevold

  • Tilknyttet:
    Prosjektdeltaker
    ved Universitetet i Oslo
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Resultater Resultater

Development and evaluation of the Norwegian Fatigue Characteristics and Interference Measure (FCIM) for stroke survivors: cognitive interviews and Rasch analysis.

Johansen Skogestad, Ingrid; Kottorp, Anders; Larsson, Petra; Normann Moen, Marie Therese Kristine; Gay, Caryl; Borge, Christine Råheim; Lerdal, Anners. 2023, Quality of Life Research. MAH, LDS, UIO, UoCSFVitenskapelig artikkel

Post-stroke fatigue: an exploratory study with patients and health professionals to develop a patient-reported outcome measure.

Johansen Skogestad, Ingrid; Kirkevold, Marit; Larsson, Petra; Borge, Christine Råheim; Indredavik, Bent; Gay, Caryl; Lerdal, Anners. 2021, Journal of Patient-Reported Outcomes. STOLAV, OSLOMET, NTNU, LDS, UIO, UoCSFVitenskapelig artikkel

Fatigue and sleep apnea three months after first-ever stroke.

Gay, Caryl; Berg, Søren; Hansen, Aleksander Grande; Ihle-Hansen, Hege; Johansen Skogestad, Ingrid; Stubberud, Jan; Larsson, Petra; Lerdal, Anners. 2020, European Stroke Organisation and World Stroke Organization Conference 2020, ESO-WSO 2020. STOLAV, LDS, UIOPoster

Psychometric properties of a short version of Lee Fatigue Scale used as a generic PROM in persons with stroke or osteoarthritis: assessment using a Rasch analysis approach.

Bragstad, Line Kildal; Lerdal, Anners Vetle; Gay, Caryl L.; Kirkevold, Marit; Lee, Kathryn A.; Lindberg, Maren Falch; Skogestad, Ingrid Johansen; Hjelle, Ellen Gabrielsen; Sveen, Unni; Kottorp, Anders. 2020, Health and Quality of Life Outcomes. MAH, OSLOMET, LDS, UIO, OUS, UoCSFVitenskapelig artikkel

Lack of content overlap and essential dimensions – A review of measures used for post-stroke fatigue.

Skogestad, Ingrid Johansen; Kirkevold, Marit; Indredavik, Bent; Gay, Caryl; Lerdal, Anners Vetle. 2019, Journal of Psychosomatic Research. STOLAV, NTNU, LDS, UIO, UoCSFVitenskapelig oversiktsartikkel/review
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